There are a ton of different things us MSer’s deal with. One of our quirks regarding this illness is L’Hermittes phenomenon. This little gem is a vibration feeling when we put our chin to chest. Odd huh? I think so too. I’ve had it for years. I mostly get it but not limited to, when I get a flare up. This little gift MS has given me is more annoying than anything.
When I first got it, it drove me bonkers (not a far trip right?) but now it’s more of an annoyance. Something I rarely tell my dr. about. With MS the coating on our brain has holes (lesions) in it, leaving the nerves exposed which cause misfires of the nerves. Kind of like a frayed electrical chord. That’s also what makes our walking, speech, etc get squirrely.
I remember years ago, when newly dx’d I had a ton of flares. Some really bad and some just more of a pain in the ass. One such time I was getting a vibration in my crotch. Yep in my crotch. I was mortified!!! At first I thought maybe a gynecological issue? Then realized it was just my good friend MS saying Heyyyyy girl Im still here. It got to the point that I felt the need to talk to my neurologist Dr. Shumate about it.
Now picture it, I go in for my usual visit thinking I have to ask the dr. about this FML! Dr. Shumate comes in the room looking every bit of a dad or granddad. How the hell am I going to bring up the vibration in my crotch?
Well he does some of the normal things like make me walk, checks my hand/eye coordination etc. I figure this is the perfect time to get this off my chest, so I blurt it out. Dr. Shumate I’ve been getting a vibration in my crotch. He looks at me like he’d never heard of such a thing. Needless to say I was very embarrassed. I loved that dr. every time I’d go to him and I had to take off my shoes so he could check the gait in my walking. This very prominent Dr. would help me put on my shoes, and tie them for me like I was a little kid. I was crazy about him, he was by far the most fatherly dr. I had ever had the pleasure of seeing. I most definitely didn’t want him to think ill of me. He didn’t, I don’t think. We just chalked it up to one of my MS symptoms. You know the gift that keeps giving.
This little entry was just a snippet into the weird things an MSer can go through. Mind you not everyone has this and not everyone will get this but it happens. This disease is different for everyone. By writing this I hope to make someone feel a little less crazy. Shit happens and it really happens when you have this little gem called MS.
So I feel halfway human and am going to attempt the drive to the dentist. Later in the day is my appointment with the neurologist. I really don’t see much point in going but I go. Sorry if that’s TMI but the facts are the facts. So there ya have it.
Wishing everyone a very happy and warm Thursday!