MS,mobility and becoming a hermit and staying present….

I start this entry with the title above because it’s quite a tricky maneuver.  I didn’t realize how tricky until my mobility started getting funky yet again. I did a round of steroids last weak because I just felt off kilter. Vision issues, weakness etc. I took that round hoping I would head it off at the pass. No such luck. My dr’s calling me in more today as well as a script for antibiotics. I think I may have a UTI going on.

Yesterday I had my son pull my walker out of the garage because I’m feeling very weak. I don’t think my cane would be enough support right now. I truly hate using this device, but sometimes it’s a necessary evil. He pulls it out and I cleaned it up.

Lance and I went to the store yesterday to pick up groceries. Yeah I got the pity look because of the walker, yes I shot back with dirty looks. I try to be a pleasant person, but sometimes the bitch comes back to the surface. We got through Walmart and went home. Lance cooked dinner since I’m really not up to stand by the stove. I do the most of the cooking, but when I’m having a hard time he always steps up to the plate. We’re a true blue team at this point. We wasn’t always but are now and I’m thankful.

With mobility issues it makes it so much harder to do simple tasks. Just going to the grocery store was a chore. Had to fold up the walker, then unfold it etc. I told Lance he’d have been better off going without me. He said no he likes for me to be with him. But I know it has to be a pain in the ass to have to do all that extra for me.

Came home and realized I missed a call from my mom. She’s my step mom but I never thought of her as a step parent. I love her so much. I call her back and talk with her. I started crying. With me feeling poorly and talking to her it brought me right back to being a little girl needing her mom. She is such a calming presence, I talk to her and felt better about things. She told me she’s praying for me. I always say from Lee’s mouth to Gods ear. It means a lot that she keeps me in prayer.

I got up today fed my pups and headed back to bed. I’m give out tired lately. I went back to sleep and woke feeling a little better. I got up and did a LIVE video in my group. I was in my jammies and looked like hell, but I feel its important to stay present. If anything it lifted my spirits to talk to my friends. I don’t think people put enough importance into being present. If we don’t do this the disease wins. It steals our life. I’ll be God damned if that happens to me! I conversed with my buds and was in a better mood after doing it.

The above video is an older one, but you get the point.

A girlfriend of mine thats also in my group did a LIVE video. She did great! She has a dynamic personality and is very much a straight shooter, like myself. I was so excited to see her! That also brightened my spirits.

My point to all of this is stay present. If you are having mobility issues, be part of a group. You have to get out of the house if anything do it on the computer.Just that little interaction did wonders for my mood. 27336708_2004180019820979_4707749854318528826_n

Happy Tuesdays folks! Make it a great one!

Author: mswithmsalex

A funny gals take on the ups and downs of dealing with MS. The stuff people don't like to talk about. The hilarious situations I've found myself in. I hope this brings laughter to a disease that isn't very humorous

2 thoughts on “MS,mobility and becoming a hermit and staying present….”

  1. Alex honey, you have been pulling me along all week, I am here to return the favor anytime. I really couldn’t have done it without you. Please rest and KNOW that this will pass, but in the meantime, i’m only a phone call, video, fb group chat away as are so many others that love you

    Liked by 1 person

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