Steroids and MS

img_5596So I did a round of steroids last week. They really didn’t do anything but I was holding out hope. While on them I notice a burning while peeing. A UTI, fun times I tell ya.

With us MSers UTI’s are a thing a dangerous thing. They are common to us because our bladder doesn’t empty completely. This happens to me a lot. Causing me to always feel like I have to pee. It bites and can be painful, the painful part is a pain in the ass. But it being dangerous is more unnerving than anything.

Why UTIs Are More Serious if You Have MS

If left untreated, the bacteria can pass from the bladder up the ureters and into the kidneys, leading to a far more serious infection. In fact, UTIs are the most common reason for people with MS to be admitted to the hospital. Unfortunately, even a mild bladder infection can trigger a cascade of inflammation within the body, aggravating spasticity, and causing a relapse. In addition to this, the relapse may be more severe than usual and last longer. For this reason, recurrent infections may even be associated with the progression of neurological symptoms. Because of all of this, it’s important not to dismiss bladder changes or even blame feeling tired as “just another annoying MS symptom.”

Urinary tract infections: MS almost always creates havoc with bowel and/or bladder function.  It doesn’t take much for a UTI to develop from urinary retention, frequency or urgency – all very common problems with MS.  UTI’s are known to cause pseudo-exacerbations, and if left untreated, a UTI can quickly turn into sepsis – an infection in the blood stream that can harm our internal organs and cause death. Sepsis must be treated quickly and aggressively, and it requires the patient to be able to articulate the problems they feel in their body long before they become apparent to a doctor..

Above was part of an article written by Laura Kolaczkowski regarding the death of Annette Funicello

With all of that we have to be super vigilant about making sure we keep clear of these. With nerve damage it’s hard to Gauge. I personally wait until it becomes serious enough to require antibiotics as well as steroids. If I was more on top of it, I wouldn’t require steroids as well as antibiotics . Do as I say not as I do and all that jazz.

So I did last weeks steroids and then realized maybe this burning while I pee is the reason I’m flaring. Mind you this has happened in the past. I do know better.

My dr gave me meds for both. The steroids are starting to work and I’m on the mend.

I’m hoping I can rehab enough, not to have to depend on my walker. The cane is crippled enough for this girl. I will push through this BS as I always do. With a smile on my face and my head held high.

My kids always joke that I’m a G (gangster). I always want to be that woman in their eyes. The gangster that never quit. I hope I can always keep up the front. It’s important that they have a strong role model. I always want to be that for them.

So here I am being a G like always and keeping on with the keeping on.

My group is doing great. Did a live feed with my girl graceful not. Love her. She’s a wild woman,much like myself. I truly think we’re doing good things in the group. Bringing laughter and inspiration to others is a worthy cause if ever there was. The ever faithful public servant. Trying to do my part in this crazy world. Just because I’m for all intents and purposes a recluse doesn’t mean I can’t be a productive member of society.

I end this entry with do a good deed, it’s a great feeling. Happy Thursday folks.

Author: mswithmsalex

A funny gals take on the ups and downs of dealing with MS. The stuff people don't like to talk about. The hilarious situations I've found myself in. I hope this brings laughter to a disease that isn't very humorous

8 thoughts on “Steroids and MS”

  1. I am so sorry you had to deal with steroids but I am glad you are on the mends now! Steroids make me lose my mind at times. I don’t know about you, but my emotions will be all over the place! Gracefulnot will definitely keep you laughing!! She is absolutely hilarious and gosh I love her too!!! I hope your Gangster behind is getting lots of rest and staying hydrated. Staying hydrated with steroids is so important!!!! I hope you start feeling much better really soon my dear sweet Alex!!! Lots of love and comfort always!!!

    Liked by 1 person

    1. Thank you so much sweet lady. I’m getting there. Staying hydrated and trying to eat good. I’m always nauseas so I don’t get hungry. But I am forcing myself to eat.
      Steroids get me a little cranky but I’ll try not to take it out on my hubby. lol it is hard though because the emotions are on the surface. But yes Gracful not keeps me chuckling. Love that lady. Hope your weekend is fantastic chickie.

      Liked by 1 person

      1. I completely understand feeling nauseous while on steroids! I know they are meant to help, but the side effects are miserable! Some people while on steroids want to eat everything, but I was the opposite and actually lost weight back in October when I was on a high amount! I know the emotions can be all over the place, but I am sure you are not too bad to your hubby!
        I really hope you start feeling much better soon! Graceful is so great to chat with! She had me laughing the other night on Facebook!! You and her are great people and I have love for both of you!
        I hope the weather is nice for you this weekend and you are able to enjoy some of it!!! Lots of love girl!!!

        Liked by 1 person

      2. Actually I’m nauseas all the time from pain. The steroids aren’t bad. I actually do ok with the false sense of well being they occasionally give. Lol but yes they do make my emotions stay on the surface. It’s ok Lance is used to it by now. lol I’m doing pretty good today. Yay!!!!!thank you for the kind words you’re always a sweetie. I appreciate you. Yes Grace is my bud. She’s a keeper for sure. Lots of love chickie. Happy Saturday to ya ❤️

        Liked by 1 person

      3. I understand pain making you nauseous! Lately my pain has been so out of control that I can hardly eat. I am glad your hubby is so understanding of the emotions being all over the place! I am SO glad you are feel pretty good today, I hope you continue to get even better! You and Grace are both keepers! Lots of love to you as well Alex!
        Crazy question, are you on Facebook? That is one way I chat with Grace!

        Liked by 1 person

      4. Yes ma’am. I’m alex pierce-king. I also have a chronic illness group sofaking sick and tired of MS.
        So sorry to hear you’re suffering like that. It’s the worst when pain makes you nauseas. It’s like the point of no return. My heart goes out to you. I can identify.

        Liked by 1 person

  2. Hoping you feel better today. I recently was very sick with upper respiratory and the doc said no steroids while I’m sick… It sounded weird to me but I don’t live where I can see an Ms specialist. You keep being a gangster girl. You inspire me.

    Liked by 1 person

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