Secondary progressive?

So today I went to my neurologist and that’s what he said. He is a lot more of a straight shooter than the last moronic neurologist I went to. He’s not a mealy mouthed jerk like my last one. He didn’t tell me what a nasty disease it is and him haw around about it. Just the straight facts. The last one went so far as to tell me I was primary progressive and then change his mind. Like really? What professional does that?

I have to say it’s a hard pill to swallow. I kind of had a feeling I had progressed but hearing it sure didn’t make me feel any better. He had my records from my other neurologist and MRI discs. That coupled with me not having any stamina at this point and not being able to rehab after the flare over a year ago he feels this is where I’m at.

I’m far from stupid and really didn’t need him to tell me this. I mean come on 3-5 days bedrest after 1-2 days of activity kind of says it all. I knew this but we have this thing it’s called denial. You know that thing in your head that says fuck this there’s no way in hell I’m going that route. Yeah I’m guilty of it. I covered the sun with my hand.

Eh, with all that being said I’m still going to rock MS!! I’m going to fucking rock secondary progressive like a mother effer!! On decent days I’ll still do my hair and make up and dress cute. I’m not in a wheelchair so there’s that. I’m positive I have a great life still and all, because I’m a badass and know no other way to be!

I’ll still attempt to play golf with my cutie even if I have to rest all week to have one or two fun days.

My family will see me through this and we will continue to be “that crazy family”. We’re fun, we’re loud and by golly we have a good time and at the end of the day that’s all that matters.

The neuro also said he’ll forward everything to my social security atty so they have proper documentation on hand. This is a good thing for sure, maybe now Social security will get with the program and not make me beg for what I’ve worked my whole fucking life for.

I will save you all from my rant about Social security and end this with enjoy whatever good times you can, life itself is a gift❤️

Author: mswithmsalex

A funny gals take on the ups and downs of dealing with MS. The stuff people don't like to talk about. The hilarious situations I've found myself in. I hope this brings laughter to a disease that isn't very humorous

9 thoughts on “Secondary progressive?”

  1. Girl I truly love how amazing and positive you are! I do believe that is the best way to handle this pain in the ass illness! I am sorry that things have progressed for you, but I do believe if anyone can kick MS’s ass, it is you!!!! I will continue to send you lots of love and comfort!!! I am going to be honest with you, it was not until very recently I have heard about RRMS progressing to Secondary Progressive. I guess for some reason I thought that if I was taking the meds the doctor said will work, I would not have to worry anymore. I am like you and will fight this illness as strongly as I possibly can and I can not admit this to many people, but you are my exception, it scares the hell out of me. I am 36 and was diagnosed almost 18 years ago so I guess it could happen anytime, right? Alex, you are really amazing and I love reading all your posts on this blog and Facebook. With how sassy you are, we really are a lot alike and I love being able to get to know someone like you! I hope you have a great evening and I thank you for sharing today!!

    Liked by 1 person

  2. You rock girl! I’m with you. No thumb sucking while curled into a fetal position. Fight like hell every single day. BTW, you should write about your experience with the social security office some day. I’m sure it’s an entertaining story

    Liked by 1 person

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