Gettin’ on with the gettin’ on

As you guys know summer + MS can lead to fatigue. In the past I’ve done pretty good. I’ve rocked the beach in the past and still worked in my yard. Last year and this year not so much. I hadn’t blogged the way I’d like to and basically been a lump on a log for me most part.

I’ve been exhausted, hadn’t even really participated in my group very much. To say I’ve been a spent bitch would be an understatement. My DH has been helping me around the house because even vacuuming has been hard on me.

Vision, dizziness and fatigue have been more than I can wrap my head around. Does this piss me off? Very much so. I get very frustrated with my body failing me. Failure has never been an option for me.

I’m Alex mother effin Pierce-King and I will NOT succumb to the MS bullshit!!!!

I see people in my MS groups dealing with a boatload more than what I deal with. This is always a wake up call to be grateful for the things I CAN still do. I’m still blessed and still grateful that I woke this morning. It can all be overwhelming at times but if we look at the big picture and see this from another perspective we can find the good in any situation.

There’s a fella in my group sofaking sick and tired of MS who posted about how he was three years into MS. And while he wasn’t celebrating having MS he was adapting to the day to day changes that are unpredictable.

I agreed with his take on this sassy ass of a disease and it’s ever changing ways. While I’m not happy or celebrating having it, I am grateful for the person it has made me. I see most days as a gift.

This morning as draggy as I’ve been I pulled myself up by my bootstraps and got moving. I got into some work out clothes, called my son and requested he pick me up to go work out. My legs have been funky so I didn’t trust my driving.

In true David fashion he came and got me and we worked out. I was weak and tired but I did a little something. By the time we left my head was throbbing and David had to hold my hand to walk to the car. Even my cane didn’t make me feel secure walking. I was dizzy and unsteady and probably should have had my walker, but my boy held my hand and got me safely to the car.

Kind of crazy how the roles reverse. Needless to say I’m very grateful to have his and his brothers support when I need it. So while today wasn’t my best MS day it was better than yesterday.

Author: mswithmsalex

A funny gals take on the ups and downs of dealing with MS. The stuff people don't like to talk about. The hilarious situations I've found myself in. I hope this brings laughter to a disease that isn't very humorous

4 thoughts on “Gettin’ on with the gettin’ on”

  1. Alex,
    Thank you for your blog. I need to write more often on my blog but I need to make it more focused and use my time to write.
    I applaud you for putting into words things that “people don’t like to talk about”. I wish I felt like the situations were hilarious. Sometimes I feel so disjointed that they are not hilarious at all. I need to laugh at myself more often. I often try to deny my disease and I don’t talk about it much. I only disclose when I have to. I don’t like people to think that I can’t do my job well enough, or can’t help someone with something, or be a good enough friend. I want people to think of me as me not as a person with MS who will cancel plans or not show up to work, etc. I already have enough of that with people possibly looking at me differently because I am a woman married to a woman. I don’t need to be discriminated against for 2 things…
    Thank you for your frank discussion on this topic.
    Laurie

    Liked by 1 person

    1. I’m so glad you enjoy my writing Laurie. I find a lot of my situations really funny because if I didn’t I think I’d slip into a dark place mentally. It’s therapeutic for me these days. I worked 911 for many years, and the only way to make it through that career is to have a warped sense of humor. So laughing at myself and my disease is my coping technique.
      As far as denying the disease, for many years I put my MS on the back burner. I found myself going above and beyond with work and my family, in hopes of everyone looking at me as healthy. This wound up hurting me in the long run. There’s no denying it at this point for me and I’ve found that those closest to me didn’t understand why I couldn’t just push through at times. Now I am perfectly ok with setting boundaries and telling family and friends when I can’t push through. It comes in time, you don’t have to force yourself to look at things differently or write about it until you’re ready. We all come to things in our own time and just like MS is different for everyone, we all cope differently as well. The way you’re dealing is the way I dealt for many years. I miss being able to fake wellness. You never know, you may never have to put it out there. I know I wouldn’t have if it didn’t become so apparent to everyone around me.

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      1. Alex,
        Thanks. I’m very much at this place of knowing I need to take care of myself more. I’m starting baby steps this summer. I long for the heat during the winter until it gets here because I feel I can’t get cool. This year has been worse than other years.
        Each day feels like a new challenge. Right now I have constant numbness on the left side of my face which cause a multitude of issues. Tomorrow may be something else. I always look forward to your posts to know it’s not only me. Btw, you share your name with my daughter Alex 🙂
        Take care,
        Laurie

        Liked by 1 person

      2. I’m so sorry the heat is getting the better of you. I know it’s kicking my ass as well. The struggle is horrendous at times. The winter is painful then summer comes and we get a glimmer of hope and then it the heat kicks our butt. You’re absolutely not alone.
        I’m hoping to one day to have a granddaughter or grandson named Alex. Wish me luck, my boys are on the hold out. Lol
        Take care. Hoping the numbness subsides soon.

        Like

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