Reinventing yourself and chronic illness

In today’s piece I’m going to go over what it truly means to reinvent yourself and how important it is to do while battling a chronic and progressive disease such as MS.

I’d have to say that I’ve (to a certain degree) reinvented myself several times over the past 48 yrs of life. This wasn’t necessarily due to MS but just changes in my circumstances. Over the years I’ve been able to meld into the different situations life has thrown at me.

I went from Sandy from Brooklyn (childhood nickname) to Alex (my full name being Alexandra) living in Panama City Fl. I went from selling cars to selling real estate to dispatching police and fire and answering 911 calls.

I’ve went from being Bobs wife to Bobs widow. I then went from being Bobs widow to remarrying and moving on with life. I went from being able to pull a 12 hrs shift to struggling through a 10 hr shift. Then from there went from RRMS to SPMS. I went from being highly employable with a great work ethic to not being employable at all because of the severity of my progression. That progression leaving me barely able to remember meds, bills etc.

Throughout all of the different situations life has thrown at me I’ve been able to keep positive and hold on to faith and my beliefs, which have brought me through it all.

I also went from having a nice safe home to live in for the past 18 yrs to having to depend on FEMA to provide me with a travel trailer that has been placed in my front yard until my broken home is repaired. By the way, I have never even been camping so this is quite the eye opener.

This was a humbling experience to say the least. (I’ve wrote in regards to MS in the past) I was on top of the world and then my applecart was over turned and I was brought down a notch. I truly believe these humbling moments are meant to teach us.

While I wish this hurricane never happened, I know I’ll learn something from it. Like when I was dx’d with MS after being fairly healthy my whole life to having to wrap my head around this disease and learning how to rehab my legs and arms many times over the years.

My girlfriend Melissa always says life is on life’s terms. This is 💯 true. We can put the effort in and always strive to succeed but we also have to be able to meld with the different struggles life puts forth.

I was speaking with a girlfriend via txt who is pretty new to the MS dance Ella-kate about how difficult it can be, but we can take the negatives MS throws at us and work through them in hopes to make it livable.

While I used to be able to play off not being “that sick” to now actually “looking” sick. You can actually see the weariness in my eyes. I’m tired and now “look” tired. Not having a pity party, but the facts are the facts and I’m ok with that. I mean jeez It’s been a long time.

The point to all of this is to point out that we have go with the flow, learn from the different situations. We need to learn as well as grow from all of the experiences given. We should try our level best to meld and embrace the changes life brings and handle them with grace and a fierce determination to not give up. I hope I put that front and center. Even though things are ever changing, I’m going to put my spin on things to take whatever positive out of them that I can.

I’ve likened myself to a chameleon before, changing with my surroundings. This isn’t a bad thing, but a very important lesson. We have to change in order to learn and move forward. Change is scary, but doable.

This is my first blog in a while, I’ve been super busy as well as a bit emotional about the whole house/hurricane thing. Hoping this gets my thoughts across about change.

This was my sons room, I had his painted for him when he was a little guy. It made it through the storm as did I 😉

Let’s make it a good one folks and Happy Thursday. Put good things in the air and good things will happen. 🌼🌸

Author: mswithmsalex

A funny gals take on the ups and downs of dealing with MS. The stuff people don't like to talk about. The hilarious situations I've found myself in. I hope this brings laughter to a disease that isn't very humorous

10 thoughts on “Reinventing yourself and chronic illness”

  1. You went from being a little girl to being a warrior. I hope you ralize that. Others would give up & quit. You never did.
    Smiling here. Tempted to call you a liar too, because the woman in that photo can’t be 48.

    Have a beautiful day. Keep fighting.

    Liked by 1 person

    1. That choked me up. Thank you so much. I’m very much 48 and can’t wait for the big 50. A lot of women are ashamed of their age. Not this chic, 48 and still going strong, on my good days of course. Lol.

      Liked by 1 person

  2. Alex, I am so sorry I am this late with reading and commenting. You always show so much strength and passion for life. It seems life can thrown anything at you and it doesn’t keep you down long. You inspire me to never give up no matter what life has in store. I admire you more than words can even explain! It is a true honor to know you and really learn how strength can change any situation. Thank you for being the strong you we all know you to be!

    Liked by 1 person

      1. You are welcome Alex! Your words just now really made my week better. I haven’t had the best week and am feeling pretty discouraged. I lost my job yesterday for some BS reason that wasn’t my fault in the least. I have always been praised there and never been written up or anything. It is such BS!!!!!


      2. I am so sorry. Just know while this seems like a barrier it may very well be a new and better path for you. Don’t let it get you down chickie. Keep the faith. It will see you through

        Liked by 1 person

      3. Thank you so much Alex. This really caught me off guard completely and has left me feeling down. I know everything happens for a reason and there is something better out there for me. I do appreciate you kind and encouraging words.

        Liked by 1 person

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