Staying present, the struggle is real ….

As you all know I can be a bit preachy at times. The reason I’m so preachy is because I firmly believe in what I’m saying and think we can all learn a little something from listening to others. No, I don’t think I have all the answers, but I do know I’ve made a boatload of mistakes over the years, which have led to a ton of wisdom. I’ve preached about many things. Parenting, friendship, living our best life through a chronic illness etc etc. I’ve also preached about staying present. Present in our lives, present in our families life so on and so forth.

To my chagrin I admit I hadn’t been staying very present as of late. I’ve been just going with the flow and kind of hanging out in the shadows of life. I mean damn I’m tired. The last almost 8 months have literally whipped my ever lovin’ ass.

I’m not necessarily apologizing for my hiding out in the shadows, but more giving an explanation as to how things have been. Is this an excuse? Absolutely f*cking not! We all get tired and sometime (out of self preservation) decide to sit certain things out. Rather than pushing ourselves when we’re not up to it. We can do this and not be ashamed for taking the path of least resistance.

With all of that said I was determined that Mother’s Day would not be a casualty of my lax attitude. The boys always do it up for me and as always they delivered. They decided we’d go to La Crema it’s a really nice tapas/wine bar that my eldest works at.

This is not my eldest, but my youngest Jake.

I will admit I almost cancelled, I was tired and sore. The day prior I fell in the yard, which is pretty damn embarrassing when you live on a busy street in the middle of town. Needless to say I was a cussing heifer when it happened. I wound up with thorns in my hands and knees from some type of horrid weed that’s started cropping up since the storm. I swear that storm was much like MS the gift that keeps giving.

Me and my silly little family. Kind of hard not to stay at least semi-present when you have characters like these to put it all in perspective♥️

So here I’ve been, all chill and shit, hiding from life (to a certain degree)and laying low. My sweet pups keeping me company on the regular, entertaining me and keeping watch. My dear hubby and sons working as always and me trying to get my hermaphrodite (an oddity) of an immune system to work with me. All the while trying to figure out if a new MS treatment is a good fit for me.

The newest is Mavenclad, my neurologist and myself are mulling it over. He’s doing more research and asking other neurologists that have used it on patients if it really is all of that and a bag of chips. After all, the drug reps just sell us all a dream and then don’t accept responsibility if the drug doesn’t work as well as advertised. I’m hip to their load of shit😉

Well it is spring, which is usually my time to shine, so I’ll give it a whirl and try to be more present. I will say, even when I’m hiding or laying low my life is pretty damn good and for that I’m grateful.

I’ll be going to the cardiologist later this month and I’ll be sure to update every one. As far as the Mavenclad goes, that is months off from what I understand, but I’m hopeful.

As long as we’re at least trying that’s all that matters. #nevergiveup #nevergivein #alwaysgiveityourbest #movingforward #onwardandupward

Author: mswithmsalex

A funny gals take on the ups and downs of dealing with MS. The stuff people don't like to talk about. The hilarious situations I've found myself in. I hope this brings laughter to a disease that isn't very humorous

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