Waking up a day or two feeling somewhat decent these days are beyond over the top fantastic.
You’ve all been privy to the shit show that’s been going on with my MS. It’s been horrible, leaving me with a feeling somewhat of hopelessness.
Hard times suck! They suck royally. I’m not here to pretend or blow smoke up anyones ass. It’s hard and can be somewhat be depressing. Did I get kicked in the jaw? Yep folks I did. I was beat to hell mentally and physically.
I can’t say how many times over the past couple of weeks I thought oh my GOD how will my family go on without me being a busy body in their life? I also thought how much I didn’t want to be away from them.
We’re high spirited, argue and bicker kind of people, but we’re a tight bunch. We’re jerks, we’re us and we’re good with that. We make no apologies and offer no excuses. We’re us, plain and simple screw you type of people.
I had several issues with my breathing at night that alarmed me. I woke up gasping for air. This was brought on by my newest lesion placed oh so lovingly in my clavical spine. Yes I’m being facetious;)
My point is I’ve had a good day or two and yes life is still good! I’m still fabulous and still the HBIC😂
My thoughts are to please always hope and look forward to a better day. Hope is huge!
#onwardandupward #HBiC #Fabulous#Hope
Amazing. I don’t know what a good day is anymore. Just got a pass on my eye exam, so I guess that’s good. But had to tell the kids there will be no cabin stays this year because I can’t finish the work and will never be able to.
It’s also pouring rain so I can’t go out and play with my camera. Bad when all you want is a small pleasure and even that is denied.
LikeLike
I’m sorry man. I was and am still shocked I’ve experienced a couple. Keep the hope man, they’re in there, just hiding for now.
LikeLike
Sounds like a normal, typical family. It’s amazing that when you are dealing with something like MS, how the simplest things, like a really good day, can restore one’s hope and outlook
LikeLiked by 1 person
Exactly. It’s amazing the amount of appreciation we have for every little thing that give us a glimmer of hope. Btw we’re anything but normal. Dysfunction at its best. 😂
LikeLiked by 1 person