MS Badass

As I lay here in my bed writing my blog I think, yeah, even though I’m laying here because I hardly slept last night from nerve pain, I’m still an MS bad ass.

I use the term MS badass vs MS Warrior because I’m pretty sure I was a bad ass right out of the birth canal. Then I happened to get MS. I’m not a warrior because I’m not fighting MS I’m working with what I have to make my days as good as they can possibly be. No fight there I’m still a badass and rocking the shit out of MS.

But I’m sure some look at it differently. Some like the term MS warrior because they feel they’re fighting for their life. I get it. I am a different bird, after all if we was all the same it would be a really boring world.

I’ve seen in several groups where people posting about their MS tattoos. I have a tat with my kids name on it. I like tattoos but now that I’m older I steer clear of them only because there’s nothing that I want on my body that isn’t there already. In one of my groups I liked a lady’s MS tattoo but told her I wouldn’t go that route because MS has tattooed my ass more than I really want already. I don’t want to give MS any credit for making me the person I am.

That and I hate the pity look people give when they find out I have it. I hate pity. It’s not my gig at all. So I’m not going to advertise the situation. Don’t get me wrong I’m very passionate about educating people about the disease I just don’t need to spend any more money on that tricky bitch than I already do. But to each his own. I don’t knock anyone for doing their thing. It’s just not my thing.

So yesterday was a good day. Saw the eclipse then went and played some golf. I was able to do 7 of the 9 holes we paid for. Lance did the full 18. I admit I was a little disappointed because last week I was able to pull off 18 holes and I had a killer game. Yesterday was just a rough day with fatigue,dizziness etc. Anyone that knows me knows I’m a tight wad so it killed me to pay for 9 holes and only do 7. But I have to listen to my body. I only had so many spoons to work with.

So This month I’ll have not worked for a full year. Anyone that knows me knows this really was the hardest thing I’ve dealt with since that last big flare. I’m a busy girl I like activity. I LOVED my job. It was actually my retirement job of sorts.

I used to be a 911 operator/police and fire dispatcher. I was quick AF nothing got past me. I did a good job even earning officer of the Year one year. This was a huge honor because I wasn’t an actual officer with standards, but I was a telecommunications officer. It was a great job, I made some really good friends there.

I remember when my hubby Bob passed and my officers all showed up in their dress blues. It meant so much to me for them to be there. There was standing room only at his funeral. He was loved by many and a great man.

When Lance and I met and got engaged I left the Pd and moved to Tally. I didn’t care for that area, no matter how long I was there it never felt like home, so we moved back. Back to the old house, the house I raised my boys in. The house Bob passed in. It’s an old house and we’re remodeling it constantly. It’s home and it feels good to be back.

When I came back I wound up getting a job at the airport as a telecommunications officer again. I dispatched police and fire as well as monitored alarms etc. it was a dream job. No 911 calls. No panicked mothers screaming on the other end because their child wasn’t breathing. No more car roll overs. None of it. It was chill as can be. I was working with the creme de la creme of dispatch for the area. I used to joke and say it was where dispatch goes to die. It was a great job, I loved it! I even handled a plane crash. It was a private plane and nothing too major, they totaled the plane, but got out unscathed. But I have to admit I wonder if that really scary call pushed me into that monster of a flare. Stress is hell on MS. I was lucky to be able to dispatch for all those years, without it becoming an issue sooner. I’m blessed. I do miss it, but it’s my time to rest. I feel like I’ve done my service for the community and I’m good with that.

I’ll leave this entry Happy Thursday everyone. Make it a great one and as always keep it positive ❤️

The tough conversations

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As you guys that follow my blog know, I had a really rough MS day yesterday and the day prior. Today wasn’t so bad, except for some dizziness,losing my breath and the normal spasms blah, blah, blah This past weekend was jammies and slippers for the most part. I did get out one day and had a good time. But it did end with more of the same. Not being negative or looking for pity. I’m pretty good about willing myself out of a funk as you all now. Like I’ve said before, this is a conscious effort. Yesterday was rough, but I made the most out of it that I could.

I got up, showered, dressed and did  my make up.  I did a live FB video that was fun, even if I was awkward and nervous. It was my first one and I didn’t want to make an ass out of myself in my chronic illness support group. It’s fairly new and taking off really well. I didn’t want to ruin it’s early success by putting my foot in my mouth. I tend to talk without thinking at times. This can be an issue and a little embarrassing.

The spasms and malaise continued through my day yesterday. When I go through a rough couple of MS days it tends to make me cranky. I was still positive, just had a lingering feeling that something feels off the past couple of days.

My hubby came home, I tried to tell him things, ya know normal conversation. I was having a hard time thinking. Cognitive issue suck! I looked ok, but my brain told another story, as did my speech. I was struggling for words getting frustrated and just stressing MS. This is NOT a good thing. Stress leads to a flare up, it’s very much a snow ball effect. I do my level best to stay clear of stress.

I have pseudo flares sometimes. Pseudo flares are minor or even false flares. Can’t go running off to the dr. for steroids every time that happens (even if I do love them, because they give me a false sense of well being).

Steroids lead to bone density issues as well as dental issues. I love my pearly whites, so I’m very careful not to do too many steroids. I usually wait it out, to see if my feeling bad is a legit flare or a pseudo flare.

I felt pretty damn good today (with the exception of some dizziness and being winded on occasion). I did another live video, even dusted the house and vacuumed.

Four pups means I vacuum daily. If I do nothing else it’s vacuum. Even when I feel so bad that I don’t shower I or Lance vacuum the house.

So I felt pretty good. Still having a hell of a time with some cognitive issues etc. That settles it, I called my dr. for oral steroids. Hopefully that helps. Not really feeling I.V infusions, so I’m going for oral.

I call my dr. and had a hell of a time relaying that I needed steroids called in. That sneaky bitch MS was at it again, making me feel like an ass on the phone. I was able to finally spit out my request to have them call it in.

Back to yesterday, as the evening progressed I asked my husband his opinion.  See… I used to have more good days than bad days. These days seems to be the opposite. I asked his opinion. He said “yeah, since this last flare it has changed. But you’re better than you was when the last flare first hit.” I love him, he tried to line that cloud with a silver lining. He’s a good man. So now it appears I was right. There have been more bad days than good.  My memory has been failing miserably so I can’t depend on my own recall of past events. Kind of hard to gauge when you can’t remember things from one moment to the next. How bad does that suck? Pretty bad. I was teary eyed by the time we ended that particular conversation.

The thought of not getting better is unnerving. I’ve alway’s been really good about rehabbing. This last doozy took more than the others. I know I’ll still keep on with the keepin’ on. But I know it’s different than it was. The ever optimist I’ll keep hoping and working towards getting back, but in my heart of hearts I know this is just progression of the disease. I am a realist after all. Still positive, because I have it better than some.

My sweet hubby took off tomorrow so we can go see the blood red super moon. I’m excited. We have plans to go to breakfast and then play golf after viewing the moon. The last time the moon was the way it will be tomorrow was 1866. How freaken cool is that? I admit I’m not sure I can hang on the golf course because I’ve been under the weather but I’ll sure give it a shot. He wouldn’t hold me to it if I didn’t want to.

Hard conversations like the one me and the hubby had are important. If you do anything when having an issue, please reach out to your loved ones and friends so you can get things off of your chest. Even though I wasn’t real happy to have confirmation of my suspicions, I was glad I wasn’t making more of it in my head than it was. It was reassuring to have my hubby to talk to and unload my feelings.

This is a tough disease we need people in our corner. Don’t be embarrassed to tell family or friends of your concerns they can help get us through.

I’m sharing this info so I stay true to my blog. I am not one to sugar coat. I stay positive but I also keep it honest.

So I leave this with saying I’m going to do my level best to have a fun day tomorrow. Life is short, live it and enjoy it. Keep it positive, it will see you through. Tomorrow’s a new day and will be a good one. Today was better than yesterday so it’s feasible tomorrow will be better than today. With the steroids coming tomorrow, who knows, I may be kicking ass and taking numbers within a week 😜

What do you add to the world daily?

I woke today feeling kind of rough. Not cowbell rough, but still and all rough. Nauseas and spastic is never a good way to start the day, especially a Monday of all things. I get this on the regular but today is a bit more.  The night before last I was up all night, so yesterday was a complete wash. I was dizzy most of the day and spent most of it on the couch. I never even got out of my Jammie’s, my hubby cooked etc. the only thing I really contributed was tending the pups in the morning so he could sleep in.

With MS, it’s a crap shoot. You never know from day to day what you’re going to get. So this was the hand I was given today. I’m of course going to get up shower (only because I feel gross and am probably starting to smell) and try to make the day something of worth. Since leaving work and not having much to do with my day, I feel it’s important to make every day count, regardless of not being a public servant any more. I’ve always felt this way, but now even more so. It’s important to stay a productive member of society.

You see,not having a job to go to can leave feelings of not adding something to this big bubble we all share. This was NOT going to be me! I WILL make my days count. I WILL bring something to the table!!! I’ve known others who have medically retired that have given up. Even on an ok day, they’re willing to let the day come and go without being present in the day. Don’t get me wrong, there are times I physically don’t have the wear with all to get up and get moving. But if I can, I damn sure will.

As you all know I’ve started a chronic illness, support group. This group is about bringing something positive or at least funny to every day. These are some great people that are of the same thinking as myself. Great minds think alike. I really get a lot out of that group. It has become one of several happy places for me. I love them and all of their different personalities. They’re positive and funny and have a zest for life, very much like my own.

Today as well as yesterday I had to dig deep to keep positive. Yesterday I had some great interactions, that brought me a lot of chuckles. One of the members posted a video of her singing. This lady while having a hell of a sense of humor, has a beautiful voice. That brightened my day and made me sing along with her video. That’s a good thing. If I can sing, I can get out of my own head and have fun. So I did. By the way this is a conscious effort to get outside if my head. You should all do it when feeling yuck.

When I woke up this morning I saw where one of the group members posted this. It was nice to wake up to it.

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It was great to wake up and see a positive message as well as some eye candy. Thank you Lesley you’re a doll and don’t know how much I needed to see this positive message this morning.

So my hubby tended the pups. He let Daisy Mae out of her kennel to eat etc. she came bouncing into my room in true Daisy Mae form. I swear she reminds me of Kramer from Seinfeld. She comes running in all haphazardly with cast on leg, looking like a lunatic. Jeez I love her, she’s another of my go to, happy spots in my day.

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This pup is a true hellion. Tall ,brown and crazy just like me. She truly gets me motivated every day and is a hell of a service dog, if all she ever does is keep me up and moving.

So back to my original thought, what do you bring to the table every day? This was all I could muster today, and that’s ok.

Today wasn’t a good MS day, but by golly I’m going to make it one that I brought something of worth to the table.

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I’m going to shower, wash my hair, do my make up and try and get out of my head. It’s going to be a good day. I can feel it.

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Positive things happen to positive people and all that jazz 😉
I’m going to attempt a little work out and get myself looking semi human. Wish me luck, I’m not at my best today 😏

I leave this saying, bring something to the table. Smile rather than frown. Tell someone you’re happy to see them rather than spreading doom and gloom,because it’s Monday and you’re pissed you have to go to work. I miss those days and you probably would too. We deal with enough doom and gloom just being sick. We don’t need to spread that shit around. Get outside your head and bring something positive to this Monday

Compassionate Usage and MS

The topic I’m writing about today is Compassionate usage. With all the articles out there about different states suing because of opiate fatalities. I think this is something we all need to look closely at. I got approval several months ago, but finally got my card in the mail yesterday.

https://www.theatlantic.com/business/archive/2017/06/lawsuit-pharmaceutical-companies-opioids/529020/

Most of you know I used to work for a local police department. I am a law abiding citizen, and haven’t been in too much trouble over the years . Not saying I never have, shit happens. But all in all I try to stay within the parameters of the law. I wasn’t going to smoke and God forbid have an issue with law enforcement because I’m sick and needed relief.  I’ve talked about this last flare in great depth. This last one brought me to my knees, the pain wasn’t even touched by the opiates the dr. had been pushing. Yes, I say pushing because every time I went they’d give me more scripts for more opiates. The last straw came when the neuro prescribed Tramadol ER. With that particular drug one of the side effects is death. Not only is death among the side effects, but there is also info stating you can die from the first dose. When I read this I was like WTF? Does he think I want to check out? I didn’t take the first dose, because yes I was chicken shit and didn’t want to die.

I heard from a friend that suffers with severe spinal pain there is a local, holistic dr. that would evaluate and get me signed up for Medical Marijuana. I was desperate, the pain was so bad I got depressed. People that know me know I’m a chipper gal so this was completely out of character. Everyone that knows me, knows I’m deathly afraid of getting addicted to pain meds. Ive seen this downward spiral with loved ones and it wasn’t going to be me. No one gets addicted to marijuana so I feel very safe vaping or smoking.

The thing about it is, it’s not paid for by insurance. Even though it’s proven to benefit us MSer’s Ins. doesn’t cover the dr or the script. The dr was a 400.00$ get in fee. Like who the hell has an extra $400.00 laying around? I’m not currently working, have a mortgage and other bills to pay. Who stepped in when I told her? My sissy thats who. She sent me the money, so I wouldn’t have to charge it or delay any bills to get with the dr. My honey and I aren’t broke by any means but just like most, live paycheck to paycheck, and now we’re down to one paycheck in the house.  We still do fun things and eat out way too much. My sissy knew I was suffering and looked out for me. So now I just pay for my script and the dr visits which is 90.00 every time I go, which thankfully is no big deal. But what about the other people?  The ones that don’t have family to step in and help them? The ones that can’t get it because of their state law? That coupled with all of my other dr bills copays etc would be a strain on anyone.

This is gross negligence at both the state and federal  level. To leave sick people suffering is disgusting as well as unconscionable. The dr’s prescribe these drugs because they have patients begging for help, they have no legal way to help people but to prescribe these poisons.

I don’t care to smoke every day, but when shit gets real, I’m more than OK with firing up my vape. The one I ordered has a high THC level, so it makes me tired. I only smoke when the pain gets stupid and I am going to bed.

My sweetie wasn’t real happy about me sharing this info. But if I’m anything, I’m going to tell the full story and not sugar coat.

A little help could really make a difference.

So today started pretty normal, with the exception of my hubby getting up to feed the dogs without me waking.  He’s such a sweetie, he was able to get out of the bed and tend the dogs without waking me up. Go figure he’s the one that works and should be sleeping in. Instead he went about the chores letting me rest. When I did wake up I had a raging headache. That’ll learn me, being a lazy lima bean does NOT pay off. I think I may have slept too much. Regardless I appreciate my hubby’s thoughtfulness.

I wasn’t going to let a headache ruin my shine. I got up, talked to my bestie Jan for a bit and talked to another very sweet and very wise friend about looking at things from a different angle. She is super sweet and very sharp. Definitely up there on my go to list of people for advice. I had a great chat with both of them and then got ready for my day.  All four of the pups in high gear running through the house is quite the sight. They have a big time and a very good life here at the pup preserve. The joy those pups bring is immeasurable.

We head out, stop for Kambucha at Target where they always have a good deal on them. I get the 2 for 5 deal they had on one. I’m always out for a good deal. I flat refuse to pay full price if I don’t have to. While most brag about how they spent XYZ on an item because it’s pricey, I’m the opposite. I may not be working for my money these days, but my hubby works his ass off for every dime we have. So I go for the bargain. Ive always been proud of my frugal ways. Bring it to the register, ring it up and its 5.74$. I read somewhere where people had been getting over charged at the self check out at Target. Well by golly it wasn’t going to be me. I call the lady over and tell her my merchandise was being over charged. I did this in haste (note to self slow down before making yourself look stupid) I didn’t realize that was with tax. Oy, I felt like a dumbass before it even came out of her mouth. I apologized and she chuckled. Got out of there with a quickness, because I felt like a moron. Oh well at least I made the clerk chuckle.

Lance and I head to St. Andrews (which is considered down town) one of my fave parks is there and that’s usually where we go for walks. It’s right next to the marina. I love that area. It has an old town feel to it. The older I get the more I appreciate stuff like that.

We’re in luck, they have the sidewalk market going on. It’s a really cool Saturday thing they do throughout the Spring and Summer. They (vendors) sell fresh veggies, Art, crafts, homemade soaps etc. You get the picture. It’s a nice daytime thing to do if you have nothing going on and we didn’t, so it made for a nice chill Saturday.  It was bit chilly so we looked around and left.

We then went on Beach drive. Beach drive is beautiful, there are gorgeous (Victorian style) homes across the street from the beach. There is a little spot where us common folk who don’t live there can park and get out and walk the beach. This is considered a small beach but isn’t our beach, beach. No condos or anything there. It’s more of a residential area in town. So we get out after having our songfest in the car. Lance and I do this a lot. We have the same taste in music. It’s a big time, but probably would be torture for people to listen to, so we keep it for times when we’re alone. You’re welcome:)

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We had a good time and I got my dose of sand in my shoes. So we scooted out and headed for home. It was a bit chilly and I didn’t want to run the risk of getting spastic from the cold. Thats always a downward spiral it seems. I get cold and my body gets tight and the spasms start and don’t stop. I got out while the getting was good.

I get home, pups are very happy to see me as always. One thing about dogs they’re always happy to see you. Whats not to love about that? So David comes in and tells me “Mom that lady was here to see you” I’m like what lady? you’re going to have to be more specific”.  Sometimes I think he just does this to get my goat. It did. He tells me that lady you helped a while ago. I get to thinking and then I remembered. I didn’t post about it on social media because I can’t stand when people do the right thing and then brag about it.

I’m only sharing because I think this is a positive story that may encourage others to also do the right thing.  Several months ago Lance and I are in our usual position on the couch, when we hear a knock at the door. It’s neither of the boys, because they both have keys. I knew it wasn’t Jan because she always calls before coming. Who the hell could it be?  Well it was a woman, she had a bike with her and looked like she was going through a rough time, she was thin as a rail. She said ma’am I hate to bother you but I’m hungry. I told her to hold on and have a seat on the porch because my dogs are very aggressive. She understood since as we was talking the dogs was trying to get at her. They’re a mess. But they’re my mess, so don’t judge.

I went inside, made her a couple of sandwiches got her some bottled water, feminine products ( just in case) and a new toothbrush and travel toothpaste (I keep them just in case someone stays over and needs one) made her a little care package. I don’t ever keep cash on me but remembered I had a 5 in my purse. I asked lance and he had a couple of singles. Gathered all this together and brought it to her. She hugged me, thanked me and blessed me for my efforts. We talked a bit and she said she had somewhere to go but she was just so hungry and knew she needed help. She said she was going to bring me the money back, I told her no worries and I was glad I could help.

When she came back to see me and I wasn’t there David greeted her. She went on to tell him she got a job on the beach and was living at a local apartment complex. I have to admit I never expected to see her again, but I am sure glad she came by to let me know she was ok. For weeks after she came by I thought about her and worried. It left me very sad that this woman was going door to door looking for help. When David told me that I got choked up that she took the time out of her day to come see me and let me know she was ok. I hope she comes by again, I’d love to chat with her. The night she came by I remember wondering if any of my neighbors opened their door to her. Doubtful though, because of the way people are these days. That lady just needed a little help and the little bit I did made a difference. I always say today is a gift, cherish it and do something good for someone, they’ll remember it.

So I leave this entry with please do your best to do a little something to help your fellow man. You don’t know their circumstance, so you can’t judge.

You all say sweaty. I say glistening

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I used this pic because I look like a sweaty madwoman in it and that’s ok.
So as I sit in my dogs bedroom I’m having a legit conversation with Hamm (my fat ass pup) as to why he has to be there. See crazy Daisy my GSD isn’t eating very good here lately. Except when Hamm is there. The only reason she eats is because she doesn’t want him to get her food. Hamms a hog and she knows it. So I sit there explaining all of this to him. He looks like he understands. He’s a good old boy and complies. Every time he goes to walk off she goes away from her food. Then I call him back. She quick like runs back to her bowl feverishly eating. This gives me quite the chuckle.
It’s been a long day, I started a new chronic illness group. It’s for fun, positive interaction. It all started when I was part of another group and saw some really shitty behavior from one of their admins. She is nothing more than a cheeky cow as a friend of mine called her. I loved that expression!  She was a bully to several of the members. I couldn’t stay there and see her horrible behavior and not speak up. The old Alex would have dog cussed her, but the new Alex the new self reflecting Alex watched and waited until I couldn’t take no more. When I knew I was ready to get gone, I contacted the other admin and let them know what a deplorable character they had working as an admin. It’s never ok to be shitty to people regardless if your sick, rich/poor or the CEO of a company you have no right to treat people badly. At the end of the day we’re all the same thing, regardless of our situation, we’re all human, flesh and blood.  After I got it all off of my chest I excused myself from the group.
I started a new group.  A group with a positive and funny vibe. One where people can go and laugh a little. We all need a break from this and other chronic illnesses. So I started it, put the word out and so many people showed interest. This pleased me greatly. So be sure to check us out if you’re looking for a laugh or two the name of he group is sofaking:sick and tired of MS. It’s a play on words as my last name is King, I hang out on the sofa a lot these days and I’m so fucking sick and tired of MS. The credit for the name goes to my son David, he’s a smart young man I tell ya.
Later in the day my little duckie Jake came over for a visit. Between him and David they keep Lance and I chuckling. It had gotten pretty cold as the day progressed. It was 51 degrees and my body was stiff and I got a chill about me. I have a problem with body temp. My internal thermometer is off because of nerve damage. I started having tremors and spasms with chills. I was freaken freezing!! All that and I started sweating. It was a shit show for sure. The night before I woke up dripping in sweat while shivering. Back when this first started, when I was first dx’d I thought it might be menopause. How silly am I? I’ve been wishing for menopause for years.  After 14 yrs, I see these night sweats are not menopause. I asked a nuero a couple of years ago why this happened?  I got dead eyes and a rambling answer before he finally brought up my internal thermostat being off kilter because of lesions. Causing Disrupted nerve signals can cause confused sensations, such as suddenly feeling extremely cold or hot when there isn’t any logical reason for it.
Well ok all I needed was an explanation.  Thanks doc all I needed was an answer. .
MS that tricky bitch is still showing her ass as usual.
BTW I’m still waiting for menopause, it can’t get here soon enough.
So today is a new day and my group is taking off the members are a bunch of chill funny people, that I’m sure will bring me hours upon hours of chuckles.

We are THAT crazy family

 

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I start this with that title because we are legit “that” crazy family.
I should start with saying we came here to Panama City Fl 23 yrs ago. We’re originally from Brooklyn NY.  Needless to say we as a family stick out like a sore thumb. The boys have acclimated pretty well. They’ve adjusted to a southern lifestyle. They say yes ma’am and no sir and have excellent manners. But those two are still and all NYers. Twisted,quirky and funny as all get out. They would go back to NY every summer and every other Christmas to visit their dad, stepmom and siblings. They had a well rounded childhood in my opinion. To hear them tell it it was just an ok childhood, mediocre at best. . Whatever. lol

Well enough of that background. The other day started kind of  blah. I woke and went to feed my sweet pups, little Daisy Mae gave me a run for my money. That pup gives me the business on the regular. I swear she reminds me of me, tall,brown and sassy. She didn’t want to eat. She pulled the same crap the day prior.  Needless to say I was getting worried. After dealing with that crazy heifer I get to relax.

I skim through FB and see where a fellow MSer from one of my MS groups passed away. Now THAT put me in a funk. People as well as dr’s say MS doesn’t kill you. It’s not like it’s cancer etc. well I’m here to tell you that’s bullshit. People with MS young and old die from complications due to MS. So yeah you can die from it. If you didn’t have it you wouldn’t  get the complications. So yeah in essence we die from MS. I know with myself every time I aspirate I worry I’m going to get pneumonia. I do this a lot. I do it while sleeping as well as when eating and drinking. We get urinary tract infections pretty regular which can turn sepsis and cause death.

I’m 47, kids raised etc, if I did kick what can ya do?  I’ve already led a full life. Don’t get me wrong, I’m not looking to check out, but ifI did, I’ve led a very good life. But young people with this disease makes for a very sad situation. The man that passed was way to young to go.

So I was in a funk.  I wasn’t cowbell funk. But a blah funk. Having the thought of a fellow MSer passing sitting in the back of my head. I shuffle around the house a bit and my son says come on mom lets go to the tanning bed. I didn’t really feel like it but I figured it might brighten my spirits some. We go tanning then he takes me to lunch at  Moe’s.  Jake calls and meets us. There we sat being the loud Yankees we are, laughing and cutting up. We was “that” family 💯 .  We went to Target and did some shopping. Retail therapy is always good. Those boys made me laugh so hard with their shenanigans.  They both have a rich sense of humor. Coming out with snarky comments left and right. This pleases me, in my opinion a quick wit is a sign of intelligence. Those boys are very quick on the take.

They have it in txt as well, I get random txt that they include me in, group txt which I’m not a fan of unless its from them . Not sure why they do it, I guess to keep me in the loop etc. I’ve never questioned it because it actually makes me laugh. Like why would I care if Becky got pregnant or why would I care if Joey was stepping out on his gal. But it makes me laugh all the same. Here are some funny txt I thought you’d all get a chuckle out of.

15420886_10153975037031945_6250601767242083794_nthis was me telling David not to come over until 10:30 because I was working 1:30-11:30 at that time and of course someone woke me up.

998370_10200144805198424_1825919959_nthis is one where David had my phone. Jake was telling me about his haircut, he legit thought it was me texting this. Like i’d ever talk to him like that lol

14355167_10153748942726945_7254728208144261550_n.jpgme asking David to come over because I was feeling really badly.

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Evil and bitch wine. The boys thought I should know there was an appropriate wine for me.

 

Then there are the serious times. Times where I’m hanging on by a thread. Times I think I can’t do this. But my sweet hubby and kids pull me through

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This was plasmapheresis, the flare I had going on was way too tough for the normal oral or  IV steroids. Plasmapheresis filters the blood. I’m not sure how or why this works for MS but it did help in my case. I had to have a line placed in my jugular, a line is run to the heart. While placing this they hook you up to a bunch of monitoring equipment. That equipment sends a message to the cardiac department as well as sounds an alarm if something is going wrong during placement. The dr. also has a screen he’s watching while placing it.  When they went to place this it was very early and my family hadn’t arrived. I was ready to get it over with so I told them “ok lets roll with it”. Little did I know I would be crying by the time placement was over. Picture it I’m in my hospital room, they prep me, making the area sterile so not too get infection. My head was covered so I couldn’t see what was going on. The dr numbed me and started with placement. All of a sudden my heart started hurting and I shit you not I thought I was dying. All I could think was NOOOOOOOOO my family isn’t here!!!!!! I actually said this out loud to the dr. and nurses. My blood pressure was dropping. The nurse got a call from the Cath lab down stairs that my BP was dropping. They was getting messages letting them know if there was an issue, so they could respond if need be. Amazing how advanced we are these days. The dr. adjusted the catheter and the line was placed. There’s only been one other time I felt like I was legit dying. I was on an interferon and it was causing my liver major issues. Kind of crazy how the body knows before we’re even told.

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Oh how this young man cracks me up.

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My family is definitely THAT crazy family and thats ok, because our crazy light hearted silly way of being keeps me chugging along. If it wasn’t for us being THAT crazy family I don’t know how I’d cope.

I hope some of our craziness brings you a chuckle. Life is short so laugh a little while you’re here. BTW my boys are grown, 28 and 25 hopefully the language doesn’t offend. They are after all grown men and as long as they’re not cursing at me I’m good with it.