I start my entry with “Feeling like a G”. As you all know yesterday was horrible, my pain level was through the roof! I sat around cranky and mad at the world, in my robe with blankets on. You can picture it, hair up in the crazy side ponytail, all I was lacking was a smoke and a cheap beer in hand to complete the look.
I got through it! It wasn’t pretty ,but I got through it. The hubby babied me and I got through. It started with severe nerve pain in my legs from the cold, then it escalated to Trigeminal Neuralgia. It’s a feeling that is very hard to describe. I guess I can liken it to being tased. No, surprisingly enough I’ve never been teased, but I can imagine it’s a lot like that. It’s an electrical sensation in my face. Like someone is tasing me on my cheek. By the time I finally went to bed it was effecting my eye. I had pain just moving my left eye around in my head. The pain was making it tear up. Between that and my skin feeling like it was on fire I was not a happy camper. Fun right?
With all that being said I woke up without this pain. I don’t feel great but I don’t have near the severe nerve pain I had yesterday. So I’m feeling like a G a gangsta of sorts. Nerve pain brought the fight and I kicked its ass!!!!
I hadn’t had TN in years needless to say waking up without it made me a happy gal. So on with my day. Lance fed and walked the dogs. Crazy Daisy is still a lunatic and thats ok. She reminds me of myself. She’s tall and brown just like me, and she has a very willful attitude. If she doesn’t want to do something she’s damn sure not going to do it, much like myself. That pup is truly my spirit animal, and will make a hell of a service dog one day. Hopefully before she kills me.
So the day started good. I woke with limited pain, checked social media. I’m on a ton of MS support groups, so I’m laying in bed looking through the different posts and I come across a young lady that’s a newbie. I friend her, all newbies should have a friend that been around the MS block. It helps to have someone that actually gets it. After all it’s a scary time in your life and support is key to dealing with such a blow. I got to talking with her and It brought back a flood of memories. Some good some bad. I remember vividly when I was first dx’d my whole right side went dead. I looked like a stroke victim. I thank God my family was there to keep me sane (or at least partly) I rehabbed through it and you can barely tell I even went through it.
With the exception of my wonk eye, that was from Bell’s Palsy. I read somewhere it’s a precursor to MS, not sure if that’s true. There are a bunch off people that experience Bells Palsy that never get dxd with MS. My point being I went from having my hubby at the time (Bob) cutting my food to being a productive member of society and working until here recently. My last flare kicked my ass pretty damn good. It left me unable to work, I nap frequently. No, not because I’m lazy, but because I’m bone tired. You won’t get it unless you got it. Yep things have changed drastically but I’m handling it like a G!
I almost forgot to tell you all I had an unassisted BM. YAY team poopage!!!!! Now maybe I can take down my minimal Christmas decorations and do a little something in between naps. Today will be a good day!!!